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JDRF presents global Type 1 Diabetes Index to highlight global burden of the disorder

Our Bureau, Bengaluru
Thursday, September 22, 2022, 16:10 Hrs  [IST]

JDRF, the leading global type 1 diabetes (T1D) research and advocacy organization, announces the launch of the Type 1 Diabetes Index (T1D Index). The T1D Index is a first-of-its-kind data simulation tool that measures the human and public health impact of the T1D crisis in every country across the globe. Until now, there have been wide gaps in the data about the incidence and impact of T1D. Leveraging data and insights from the T1D Index can help change the lives of people living with T1D by identifying attainable country-by-country interventions including timely diagnosis, accessible care and funding research that could lead to cures.
The T1D Index and accompanying research has been published in the leading diabetes and endocrinology medical journal, The Lancet Diabetes & Endocrinology.
The condition has nearly nine million people across the globe. Certain factors like family history can increase risk, but it is not caused by diet or lifestyle. T1D causes the pancreas to make very little insulin or none at all—this means the human body cannot convert food into energy, which can lead to long-term complications including damage to the kidneys, eyes, nerves, heart and even premature death. There is currently no cure for T1D.
“As a member of the T1D community, I know many are not as fortunate as I am to have the resources necessary to live a healthy and fulfilled life,” Dr Aaron Kowalski, CEO, JDRF said, “This is why I am so proud that significant progress has been made to understand T1D’s global impact through the T1D Index. We are calling on government and public health decision makers throughout the world to utilize the tool to identify and implement interventions that can change the trajectory of T1D.”
JDRF collaborated with key partners and experts around the world to develop the T1D Index—using the results from a global survey of more than 500 endocrinologists and 400 publications to simulate the state of T1D globally and at the country level.
Simulations from the T1D Index suggest that globally, as of 2022, there are more than 3.86 million ‘missing people’ and an average of 32 ‘healthy years lost’ to T1D per person, if diagnosed at age 10.  In India, there are more than 902,172 ‘missing people’ and an average of 45 ‘healthy years lost’ to T1D per person, if diagnosed at age 10.
It also led to the identification of four key interventions that could change the current trajectory for T1D and its impact on people around the world. These cover timely diagnosis, insulin and strips, pumps and CGMs: and prevention and cures.


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